Sleep Apnea Support Group

There is a Wasatch group, and you can find their information here:


http://www.sleepapnea.org/cgi-bin/databasenew.pl?UT&&State

You can also link from that page to find groups in other states.

Sleep Apnea

As parents of children with clefts, you may want to be on the lookout for signs of sleep apnea if your child has not already been diagnosed with the condition.

"Preschool children with cleft lip and/or palate have a risk of obstructive sleep apnea that is as much as five times that of children without cleft. Obstructive sleep apnea appears to be underrecognized in this group of children."

J.E. Maclean, K. Waters, D. Fitzsimons, P. Hayward, D. A. Fitzgerald (2009). Screening for Obstructive Sleep Apnea in Preschool Children with Cleft Palate. The Cleft Palate-Craniofacial Journal: March 2009, Vol. 46, No. 2, pp. 117-123.

Here are some of the night-time symptoms of children with sleep apnea:
Difficulty breathing while asleep

• Pauses in breathing
• Snoring
• Restless sleep
• Heavy sweating while asleep
• Nightmares/night terrors
• Bed wetting

Daytime behaviors may include:

• Sleepiness during the day
• Aggressive or hyperactive behavior
• Learning disabilities
• Morning headaches
• Discipline problems
• Failure to thrive

http://newtechpub.com/phantom/snore/osakids.htm

For kids with clefts, apnea may be resolved through surgery (such as a mandibular distraction for a child with Pierre Robin Sequence), or by using a CPAP (Continuous Positive Airway Pressure) machine for sleep.

Here are a couple more articles on childhood sleep apnea:

www.stanford.edu/~dement/childapnea.html
www.sleepapnea.org/info/children.html
www.entnet.org/HealthInformation/Could-Child-Have-Sleep-Apnea.cfm

There are myriad articles if you are interested in finding more information online!

Would any of you like to share your experiences with sleep apnea in your children? If so, please email Kidswithcleftsblog@gmail.com.