Tongue-Lip Adhesion

For children with Pierre Robin Sequence, a tongue-lip adhesion may be performed aid with breathing. There is a detailed article here that has lots of information.

Here is a picture of a sweet little one just after her tongue-lip adhesion, so you can get an idea of what it looks like.

Thanks to Amy for the reference and picture! And, as always, more to come...

Mandibular Distraction

In the case of Pierre Robin Sequence, a cleft palate is associated with a small jaw, which presents additional feeding and breathing problems for children. Often, a mandibular distraction, or surgery to pull the lower jaw forward, is necessary. The site from the Pediatric ENT Associates here provides an overview of mandibular distraction, some parent experiences, surgery advice.

As always, more to come soon...

What is Pierre Robin Sequence?

There is a short explanation at Wikipedia, here, another at CleftLine here, and some great resources at the Pierre Robin Network, here. Also, if you'd like to communicate with parents of children with Pierre Robin Sequence (PRS), the Pierre Robin Network also has a Yahoo! group akin to the Kids With Clefts Utah group, and you can join here.

Thanks to Amy, Jennifer, and Jamie for the resources! We will be posting more information soon!