NOTE

The information and opinions on this blog come from parents, and the blog is not associated with Primary Children´s Medical Center or any other institution.

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This site is specifically for parents of kids with clefts being treated at Primary Children's Medical Center in Salt Lake City, Utah, but I hope that there will be information that is helpful to all parents of kids with clefts. If you are just starting to learn about clefts, I would suggest starting with the "General Information" topic and going from there. To find information on a specific doctor or topic, click on one of the links on the right. You can also search the blog using the box below the topic list. If you have information or experiences to share, please leave comments or contact me to do a guest post at kidswithcleftsblog@gmail.com. Thanks for visiting!

Tuesday, October 27, 2009

What is Pierre Robin Sequence?

There is a short explanation at Wikipedia, here, another at CleftLine here, and some great resources at the Pierre Robin Network, here. Also, if you'd like to communicate with parents of children with Pierre Robin Sequence (PRS), the Pierre Robin Network also has a Yahoo! group akin to the Kids With Clefts Utah group, and you can join here.

Thanks to Amy, Jennifer, and Jamie for the resources! We will be posting more information soon!
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1 comment:

  1. JstarOctober 31, 2009 at 9:07 AM

    There's also a national Pierre Robin Sequence group on Yahoo that is very helpful and supportive. Here's the link: http://health.groups.yahoo.com/group/pierrerobin/

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